Hirschsprung’s (HIRSH-sproongz) disease is a condition that affects the large intestine (colon) and causes problems with passing stool. Hirschsprung’s disease is present when a baby is born (congenital) and results from missing nerve cells in the muscles of part or all of the baby’s colon.
A newborn who has Hirschsprung’s disease is usually unable to have a bowel movement in the first days after birth. In mild cases, the condition might not be detected until later in childhood.
Hirschsprung’s disease is treated with surgery to bypass or remove the diseased part of the colon.
I have been fighting with this my whole life. With the result of 10 operations and an life time colostomy bag, its far from easy to live my life as an normal person. My self-esteem and confidence has dropped and I really get uncomfortable around people. Sometimes i wish i didn’t have it, but its what god made me to have. I suffer with chronic pain and i’m also on pain meds all the time.
I do thank god that i have people in my life, like family, friends, and co-workers that dosen’t treat me like an outcast. Living with this disease is not easy to cope with, but i try real hard to keep an positive attitude and move forward everyday.
There’s not a lot of people that knows about this disease, i just want to share to those who don’t know of it and to tell other people that, just because you have this or an colostomy bag, doesn’t mean that your life has to go on hold.